FIGHTING THE GOOD FIGHT AGAINST CHRONIC ILLNESS

fighting-against-chronic-illness

April did not get off to a great start. The last time I updated, I was in the midst of a double bowel prep for my repeat colonoscopy. The double prep was absolutely miserable. I think every nook and cranny in my entire body had been cleansed. I was lucky enough to get a nurse who got my IV started on the first try and I was ready to go. The nurse who came to take me back to the procedure room remembered me from my last colonoscopy attempt (maybe my purple hair makes me memorable). The whole team taking care of my procedure were great. Because I struggle with extreme nausea after anesthesia, the anesthesiologist tried a different type of medication. Dr P came in the room and said “Let’s do this!” and the next thing I knew I was in recovery crying. I have no idea what I was crying. The nurse said it was from the type of sedation they used and for the record, I still woke up extremely nauseous. After asking for Zofran, I asked the nurse if they were able to complete the procedure and breathed a sigh of relief when she said yes (my worst fear was waking up and being told that it failed again).

Dr P stopped by my room before I was discharged and gave me a heads up on how the colonoscopy went. They removed a polyp from my colon that was the same type of polyp they removed from my stomach during my EGD in February (called an adenoma). There were no signs of colitis and the junction where my bowel was resected looking good so outside of the polyp, the inside of my bowel looked healthy and unless something comes up, I won’t need another colonoscopy for 5 years! Hallelujah! I will need a repeat EGD next year but those are a breeze in comparison.

The most important thing discovered during the colonoscopy was scar tissue. Dr P said he had a very difficult time navigating because my bowel wasn’t as mobile as it should be and seemed to be fixed in place. The scarring is likely a main culprit of my abdominal/pelvic pain and pain with bowel movements. I am glad my colonoscopy occurred before my appointment with the surgeon as I knew this would be helpful information.

Two days later, my husband and I went back to Charlotte to see the surgeon. Just a brief recap of my endometriosis-specific ultrasound, they did not see any large implants but small implants or scar tissue are not visible on ultrasound. After reviewing the results, one of two things would happen. If they thought that surgery would be the best avenue to explore, they would set me up to see Dr S. If they thought that another type of treatment would be a better option, I would see Dr M.

The office called and set up an appointment for me to see Dr S. Because of our prior discussion, I assumed that seeing Dr S meant moving towards surgery and knowing about the scar tissue discovering during the colonoscopy as well as the crippling pelvic pain, I thought that it might be a really good option to look into.

I was wrong. That’s what I get for assuming, right?

Basically the point of the appointment was to tell me that I am not a candidate for surgery because I am too high risk due to my history of scar tissue and obstructions. I totally understand wanting to avoid the cycle of surgery to remove scarring which in turn means more scarring and then more surgery, etc. I totally get it. I am glad that I have doctors that aren’t scalpel happy but when do you get to the point where the benefits outweigh the risks?

One thing that Dr S wanted to check was my hormone levels because of my history of recurring endometriosis after a total hysterectomy. He said that my FSH level could indicate if any ovarian remnants were producing enough estrogen to fuel the endo. However, even if they found that any pieces were left behind, they still would not do surgery but would instead prescribe a estrogen suppressing drug like Lupron. I told him that hell would have to freeze over before taking that drug again. He was not amused.

The cherry on top of this fantastic appointment (cue sarcasm) was his comment that the source of my problem could come from having too many fat cells. Now I was the one who was not amused. He swore that he would have made the same comment if I had walked in at 100 lbs but you don’t tell a woman that she’s too fat and not expect her to be hurt and/or give you the death ray stare.

Source from: http://www.anewkindofnormal.com/chronic-illness/fighting-against-chronic-illness-2

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